'A very emotionally challenging day': Local autism organization reacts to Trump's Tylenol claims
WAUWATOSA, Wis. (CBS 58) -- President Trump said on Monday, Sept. 22 that the FDA will start warning doctors that using Tylenol (acetaminophen) during pregnancy is linked to "a very increased risk of autism."
Health and Human Services secretary Robert F. Kennedy called the rise in autism an epidemic.
After that announcement, some groups are expressing concerns about the suggestion, the studies surrounding it, and how the language used by the President could impact families.
"Today has been a very emotionally challenging day for our parents. Today has been a really emotionally challenging day for our individuals on the spectrum," said Julie Quigley, the director of community engagement at Autism United.
The Wauwatosa-based organization has been serving people on the autism spectrum and their families for more than 50 years.
Quigley said she has already heard fear from some people who Autism United serves, after the trump administration's suggestions of the cause - and possible treatment - of autism.
"That - 'Am I to blame? What did I do? What do I do now?' - That is our big concern," Quigley said. "We need to be treating our families with respect and not blame."
Autism United is cautioning families not to over-interpret these studies being circulated.
Quigley noted that autism can be related to genetic, biological and environmental factors - not one root cause.
“there’s no high-quality evidence that is establishing a causal relationship between Tylenol and autism," she said. "It is something that we need to look at more information on, but this is not the cause of autism. Not this one thing.”
Quigley said the best thing people can do right now is discuss any concerns with their doctors and remember that everyone’s experience is different.
“Do not ignore what your physician is telling you and bring the information that you know to your physician, please have a dialogue with your physician," she explained. “Please remember that autism is not something to be ashamed of."
Autism United especially wants the focus to be on support and acceptance - not on blame or shame.
Quigley herself has three children with autism, whom she says are living fulfilling lives.
They all have strengths, and they all have struggles too. That's what autism is, but I would not trade them for anything," Quigley said. "They have a different mind, and it’s different, not less. I don’t want to get rid of that."
Autism United released this statement Monday night:
"Recent reports linking Tylenol (acetaminophen) use in pregnancy to autism are not proof of causation. Current research shows associations but is limited and inconclusive. Pregnant people should follow medical guidance — untreated fever and pain can carry Significant risks.
There has been research and guidelines released by the CDC referencing the need for folate and pre-natal care:
About Folic Acid | Folic Acid | CDC
Autism is not caused by a single factor, and families deserve support on their journey.
Autism united calls for more rigorous research, clear communication, and continued
Acceptance and resources for the autistic community.
#autismacceptance"
The Wisconsin Board for People with Developmental Disabilities also released a statement in response: click here to read.